Living with Hypoplastic Left Heart Syndrome (HLHS) requires careful attention to your child’s health, even at home. Having the right medical equipment on hand can make a huge difference for safety, comfort, and peace of mind.
1. Pulse Oximeter
A pulse oximeter measures the oxygen levels in your child’s blood — a crucial parameter for children with HLHS.
- Helps track oxygen saturation at home
- Alerts you to sudden drops in oxygen
- Portable and easy to use
Many families use a pulse oximeter to monitor their child’s oxygen levels at home.
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2. Automated Blood Pressure Monitor
Regular blood pressure checks help monitor heart function and detect early warning signs of stress on the heart.
- Choose a child-friendly cuff
- Record readings to share with your cardiologist
- Useful for tracking trends over time
A child-friendly digital blood pressure monitor helps track your child’s heart function.
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3. Weighing Scale
Tracking your child’s weight is important, especially for monitoring fluid retention and growth.
- Digital scales provide accurate readings
- Keep a log to share with healthcare providers
- Helps detect early signs of heart or nutritional issues
A scale helps monitor weight, fluid retention, and growth over time.
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4. Medication Organizer & Reminder System
Children with HLHS often have multiple medications with strict schedules.
- Use a pill organizer or digital reminder
- Keep medication instructions handy
- Helps prevent missed doses
A simple pill organizer or digital reminder helps prevent missed doses.
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5. Emergency Contact & Medical Records Binder
Having all medical information in one place is critical for emergencies.
Include:
- Surgical history
- Medications
- Allergies
- Pediatric cardiologist contact info
Keep a copy at home and in your car
Keep all medical documents, surgery history, and medication info organized.
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6. Oxygen Equipment (If Prescribed)
Some HLHS children require home oxygen therapy.
- Ensure oxygen delivery system is safe and checked regularly
- Have extra supplies and masks
- Follow your cardiologist’s instructions carefully
For children who require oxygen therapy, having reliable home oxygen equipment is essential.
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Tips for Using Medical Equipment at Home
- Learn Proper Use: Always read instructions and ask your cardiologist for training.
- Keep a Log: Record oxygen, weight, blood pressure, and any symptoms.
- Check Supplies Regularly: Batteries, cables, and backup equipment are essential.
- Emergency Plan: Know when to call your cardiologist or emergency services.
Summary
Having the right medical equipment at home empowers parents and caregivers, helping children with HLHS stay safe and healthy. Monitoring oxygen, weight, blood pressure, and medications, while keeping medical records organized, gives families peace of mind and ensures early response to any health changes.